FOXG1 syndrome is a condition characterized by impaired development and structural brain abnormalities, starting at birth. FOXG1 syndrome affects most aspects of development, and children with the condition typically have severe intellectual disability. Abnormal or involuntary movements, such as jerking of the arms and legs and repeated hand motions, are common, and most affected children do not learn to sit or walk without assistance. Babies and young children with FOXG1 syndrome often have feeding problems, sleep disturbances, seizures, irritability, and excessive crying. The condition is also characterized by limited communication and social interaction, including poor eye contact and a near absence of speech and language skills.
Paraphrased from the U.S. National Library of Medicine entry for FOXG1 Syndrome
Jerad Bailey, Pharm.D; Team WV FOX Member
My name is Jerad, and it's safe to say that I've been a gamer ever since I've been able to pick up a controller. Most of my experience has been with video gaming, though recently I've developed a taste for tabletop gaming. One of my favorite hobbies is sharing my love of games with my daughter, who is a big fan of the Legend of Zelda and Kingdom Hearts. You can probably find me volunteering for Paizo's Organized Play Campaign or hear me and my friends on the actual-play Roleplaying Game podcast, Maximum Pew Pew, which I gamemaster and produce.
Professionally, I am a Pharmacist with a local Federally-Qualified Health Center (FQHC) system, providing affordable prescription therapies to some of the most at-risk patients in the state. I have long supported gaming-centric children's charities such as Extra Life and Child's Play, so when Geoff approached me to assist with this event, I jumped on-board immediately.
Maximum Pew Pew will be releasing a series of bonus content in order to help promote the marathon event on May 4-5. This content kicked off with an interview I recorded with Maxwell's mom, Marisa, about him, FOXG1 Syndrome, and the trials and triumphs the family have experienced.
At the end of every episode, I will be recognizing all donors who have contributed toward my personal fundraising goal. More benefits may follow, but I assure you everyone who donates will be eligible.
Here's how it works
Extra Life is a fundraising and gaming marathon to support Children's Miracle Network Hospitals.
I'm joining thousands of gamers and will be dedicating a day to play games and get donations from friends like YOU!